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The Poetics and Politics of Alzheimer’s Disease Life-Writing

The Poetics and Politics of Alzheimer’s Disease Life-Writing PDF Author: Martina Zimmermann
Publisher: Springer
ISBN: 3319443887
Category : Literary Criticism
Languages : en
Pages : 167
Book Description
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.

The Poetics and Politics of Alzheimer’s Disease Life-Writing

The Poetics and Politics of Alzheimer’s Disease Life-Writing PDF Author: Martina Zimmermann
Publisher: Springer
ISBN: 3319443887
Category : Literary Criticism
Languages : en
Pages : 167
Book Description
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.

The Poetics and Politics of Alzheimer’s Disease Life-Writing

The Poetics and Politics of Alzheimer’s Disease Life-Writing PDF Author: Martina Zimmermann
Publisher: Palgrave Macmillan
ISBN: 9783319443874
Category : Literary Criticism
Languages : en
Pages : 167
Book Description
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.

Alzheimer’s Disease in Contemporary U.S. Fiction

Alzheimer’s Disease in Contemporary U.S. Fiction PDF Author: Cristina Garrigós
Publisher: Routledge
ISBN: 1000410625
Category : Literary Criticism
Languages : en
Pages : 174
Book Description
This volume seeks to bring readers to a deeper understanding of contemporary cultural and social configurations of Alzheimer’s disease by analyzing 21st-century U.S. novels in which the disease plays a key narrative role. Via analysis of selected works, Garrigós considers how the erasure of memory in a person with Alzheimer’s affects our idea of the identity of that person and their sense of belonging to a group. Starting out from three different types of memory (individual, social and cultural), the study focuses on the narrative strategies that authors use to configure how the disease is perceived and represented. This study is significant not only because of what the texts reveal about those with Alzheimer’s, but also for what they say about us - about the authors and readers who are producing and consuming these texts, about how we see this disease, and what our attitudes to it say about contemporary U.S. society.

The COVID Pandemic: Essays, Book Reviews, and Poems

The COVID Pandemic: Essays, Book Reviews, and Poems PDF Author: Therese Jones
Publisher: Springer Nature
ISBN: 3031192311
Category : Social Science
Languages : en
Pages : 203
Book Description
This book contains several critical essays, book reviews, and poems that address the current pandemic to mark a sad but hopeful first anniversary of COVID. Similar to many academic journals, the Journal of Medical Humanities, in which these contributions were first published, has received a number of submissions during the first year of the pandemic relating directly to it. In the early months, the journal saw an unprecedented number of poetry submissions from physicians who seemed to be turning to verse as a way to memorialize what was happening, to find ways of healing from the devastating number of dying patients, and to capture the exhaustion and anxiety of caring for others day after day without respite. By publishing this selection, the volume editors honor and thank all those who have been caring for patients, teaching and mentoring students, and as such have been contributing to our understanding and awareness of this crisis. Previously published in Journal of Medical Humanities, Volume 42, issue 1, March 2021 Chapters “COVID-19, Contagion, and Vaccine Optimism”, “Virile Infertile Men, and Other Representations of In/Fertile Hegemonic Masculinity in Fiction Television Series”, “Movement as Method: Some Existential and Epistemological Reflections on Dance in the Health Humanities” and “The Ethic of Responsibility: Max Weber’s Verstehen and Shared Decision-Making in Patient-Centred Care” are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

Alzheimer's Disease Memoirs

Alzheimer's Disease Memoirs PDF Author: Pramod K. Nayar
Publisher: Springer Nature
ISBN: 981166112X
Category : Alzheimer's disease
Languages : en
Pages : 160
Book Description
This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality, ' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.

The Politics of Dementia

The Politics of Dementia PDF Author: Irmela Marei Krüger-Fürhoff
Publisher: Walter de Gruyter GmbH & Co KG
ISBN: 3110713705
Category : Social Science
Languages : en
Pages : 234
Book Description
Memory loss is not always viewed purely as a contingent neurobiological process present in an ageing population; rather, it is frequently related to larger societal issues and political debates. This edited volume examines how different media and genres – novels, auto/biographical writings, documentary as well as fictional films and graphic memoirs – represent dementia for the sake of critical explorations of memory, trauma and contested truths. In ten analytical chapters and one piece of graphic art, the contributors examine the ways in which what might seem to be the individual, ahistorical diseases of dementia are used in contemporary cultural texts to represent and respond to violent historical and political events – ranging from the Holocaust to postcolonial conditions – all of which can prove difficult to remember. Combining approaches from literary studies with insights from memory studies, trauma studies, anthropology, the critical medical humanities and media, film and comics studies, this volume explores the politics of dementia and incites new debates on cultures of remembrance, while remaining attentive to the lived reality of dementia.

Creativity in Later Life

Creativity in Later Life PDF Author: David Amigoni
Publisher: Routledge
ISBN: 1351866362
Category : Social Science
Languages : en
Pages : 278
Book Description
This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of ‘late style’. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.

The Diseased Brain and the Failing Mind

The Diseased Brain and the Failing Mind PDF Author: Martina Zimmermann
Publisher: Bloomsbury Publishing
ISBN: 1350121827
Category : Literary Criticism
Languages : en
Pages : 347
Book Description
This book is available as open access through the Bloomsbury Open programme and is available on www.bloomsburycollections.com. It is funded by The Wellcome Trust. The Diseased Brain and the Failing Mind charts changing cultural understandings of dementia and alzheimer's disease in scientific and cultural texts across the 20th Century. Reading a range of texts from the US, UK, Europe and Japan, the book examines how the language of dementia – regarding the loss of identity, loss of agency, loss of self and life – is rooted in scientific discourse and expressed in popular and literary texts. Following changing scientific understandings of dementia, the book also demonstrates how cultural expressions of the experience and dementia have fed back into the way medical institutions have treated dementia patients. The book includes a glossary of scientific terms for non-specialist readers.

Reader's Block

Reader's Block PDF Author: Matthew Rubery
Publisher: Stanford University Press
ISBN: 150363342X
Category : Literary Criticism
Languages : en
Pages : 359
Book Description
What does the term "reading" mean? Matthew Rubery's exploration of the influence neurodivergence has on the ways individuals read asks us to consider that there may be no one definition. This alternative history of reading tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their ability to make sense of the printed word: from dyslexia, hyperlexia, and alexia to synesthesia, hallucinations, and dementia. Rubery's focus on neurodiversity aims to transform our understanding of the very concept of reading. Drawing on personal testimonies gathered from literature, film, life writing, social media, medical case studies, and other sources to express how cognitive differences have shaped people's experiences both on and off the page, Rubery contends that there is no single activity known as reading. Instead, there are multiple ways of reading (and, for that matter, not reading) despite the ease with which we use the term. Pushing us to rethink what it means to read, Reader's Block moves toward an understanding of reading as a spectrum that is capacious enough to accommodate the full range of activities documented in this fascinating and highly original book. Read it from cover to cover, out of sequence, or piecemeal. Read it upside down, sideways, or in a mirror. For just as there is no right way to read, there is no right way to read this book. What matters is that you are doing something with it—something that Rubery proposes should be called "reading."

Dementia-Friendly Communities

Dementia-Friendly Communities PDF Author: Susan McFadden
Publisher: Jessica Kingsley Publishers
ISBN: 1785928783
Category : Health & Fitness
Languages : en
Pages : 240
Book Description
Creating dementia-friendly communities can give people with dementia the chance to continue meaningful lives with reciprocal personal relationships. Underpinning successful dementia-friendly communities is an awareness of people with dementia as active citizens and the importance of supporting engagement in community life. This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips. This compassionate book tells another story about dementia, away from negative stereotypes. This alternative approach claims people can retain a sense of dignity, hold onto hope, sustain meaningful relationships, and live with a sense of purpose with support from their communities.